Governance

The implementation of the strategy is based on a Steering Group for the implementation of personalised medicine. The Steering Group ensures a clear joint public responsibility for and collaboration on the development, implementation and operation of the national infrastructure for personalised medicine with special focus on whole genome sequencing during the strategy period 2021-2022.

Chairman

Dorte Bech Vizard, representative from the Danish Ministry of Health

Deputy Chairman

Bettina Lungren, CEO at Danish National Genome Center

Deputy Chairman

Leif Panduro Jensen, Regional Chief Operations Officer, Region Zealand

Danish National Genome Center

The chart shows governance for the Danish National Genome Center. You will find relevant documents related to the individual working groups and advisory boards below.

Organisation chart of NGC, advisory boards, clinical and technical working groups. Also appears in the headlines on the page.

Advisory Boards

(Advisory Boards are under development)

Clinical Working Groups

The Working Group for Clinical use of Whole Genome Sequencing has been established by the Danish National Genome Center in collaboration with the regions and the Organization of Danish Medical Societies (LVS) to ensure a coordinated effort for the development of whole genome sequencing for clinical use in the healthcare system. The working group for clinical use of whole genome sequencing advises the Steering Group on the selection of patient groups to be offered whole genome sequencing via the Danish National Genome Center.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

The National Specialist Network for Rare Diseases has been established by the Danish National Genome Center in collaboration with the regions, the Organization of Danish Medical Societies (LVS) and the Danish Society of Clinical Academics (DSKA).

Mandate (in Danish) (Under preparation)

Members (In Danish) - (PDF)

The National Specialist Network must provide health professional advice on endocrinological patients (e.g. patients with diabetes, goitre and metabolic diseases, osteoporosis, etc.) to the Danish National Genome Center for use in the national introduction of whole genome sequencing.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

The National Specialist Network must provide health professional advice on hereditary haematological disease, incl. children and young people with unresolved cytopenia (patients with blood diseases, e.g. leukaemia) to the Danish National Genome Center for use in the national introduction of whole genome sequencing.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

The National Specialist Network must provide health professional advice on children and young people with cancer (up to 18 years) and hereditary cancer to the Danish National Genome Center for use in the national introduction of whole genome sequencing.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

The National Specialist Network must provide health professional advice on Cancer in Adults (18-30 Years) and Hereditary Cancer in Adults to the Danish National Genome Center for use in the national introduction of whole genome sequencing.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

The National Specialist Network must provide health professional advice on Primary Immune Deficiency Diseases to the Danish National Genome Center for use in the national introduction of whole genome sequencing.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

The National Specialist Network must provide health professional advice on Hereditary Heart Diseases to the Danish National Genome Center for use in the national introduction of whole genome sequencing.

Mandate (in Danish) - (PDF)

Members (In Danish) - (PDF)

Technical Working Groups

(Technical Working Groups are under development)