Informed Consent

You must give an informed consent before the physician may initiate the genetic analysis as part of your treatment. The form you must sign is filled out by the physician together with you. The physician will examine the different items with you, and you will have the opportunity to ask questions. When filling out the form you will need to decide on a number of issues, which you may need to think over or discuss with your relatives before you give your consent. The individual items in the consent form are furthermore explained in the written patient information you will receive, and that you may want to read prior to the conversation with the physician.

Find the Consent form here

Find Registration and deregistration to The National Database of Non-Consent to the Use of Tissue Samples for Scientific Purposes regarding data in the Danish National Genome Centers here

Find Patient information regarding comprehensive genetic analysis here

What happens, when you get a genetic analysis

Genetic analysis 10 steps


Step 1

Your General Practitioner recommends that your course of illness needs to be investigated and refers you to a specialist at the hospital.

Step 2

If the doctor at the hospital suspects that there may be a genetic cause of your disease, you will be offered a genetic analysis.


Step 3

First, you will receive information about the analysis. If you want the analysis, you must give written consent. You can choose not to get information about other diseases than the one being investigated.

Step 4

Your genetic data can now be used for your treatment and e.g. in research. In this way you contribute to creating new knowledge about treatments for the benefit of you and other patients.

You can choose that your genetic data may only be used for your own treatment and register your decision in a Registry (“Vævsanvendelsesregister”).

Step 5

On the basis of a blood sample your DNA sequence is read.

Step 6

Your DNA sequence data is transferred to the National Genome Center's supercomputer, where it is stored and your DNA analysed. The supercomputer is security-accredited according to international standards.

Step 7

An experienced and specialised hospital team will interpret your possible DNA changes with a focus on explaining your illness and initiating the best treatment for you.

Step 8

Your doctor at the hospital now receives the result of your genetic analysis and explains how it can be used in your treatment.

Step 9

Your doctor may recommend that your family also undergoes genetic analysis. This can prevent others in your family from getting sick.

Step 10

With knowledge about your genes we can better understand diseases, diagnose more precisely and target treatment more accurately. Research conducted on many patients empowers us to offer better and better treatment plans for the individual patient.

The Danish National Genome Center works to support better use of new technologies and knowledge about genetics. This is called Personalised Medicine. Personalised Medicine ensures the best possible treatment for all.